The project is a multi-center, national program designed to stimulate and support basic and clinical research for lymphatic diseases. It will eventually serve as a clinical trial recruitment mechanism as therapeutics and technologies are developed. The registry and tissue bank will incorporate a broad spectrum of diseases, including but not limited to, lymphatic circulatory insufficiency (e.g., primary and secondary lymphedemas); lymphatic anomalies (e.g., developmental overgrowth and undergrowth); and some mixed lymphatic/blood vasculature anomalies.

NSLIJ Research Institute, located within 5 miles of LRF's headquarters, has enthusiastically agreed to host this national lymphatic disease patient registry and tissue bank. NSLIJ is a nationally recognized, growing university-affiliated biomedical research center, equipped to conduct research in patient-oriented basic biomolecular biology. NSLIJ has state-of-the-art repository equipment and systems and well-established infrastructure to support our program.

This is a highly significant development for the patient community. A national patient registry and tissue/cell bank program paves the way for future clinical trials of experimental drugs and therapies designed to treat lymphatic disease in human subjects. Accomplishing this long-sought after goal is a major milestone in LRF's progress. We encourage all patients to participate in this important initiative once it is fully launched. Patient information is the key to finding a solution and it a critical resource to advance science and ultimately, medical care. If you would like to receive additional information or enroll when this program is up and running CLICK HERE.